Receiving an autism diagnosis for your toddler or preschooler can feel overwhelming. It’s natural to wonder, "What do I do now?" While the road ahead may seem uncertain, taking small, actionable steps during the first week can make a big difference. In this post, we’ll walk you through the essential first steps, helping you navigate this new journey with confidence and support.

1. Connect with Support Services

The first step after receiving a diagnosis is to start building your support network. You don’t have to do this alone—there are professionals and services ready to help.

• Contact a BCBA (Board Certified Behavior Analyst): A BCBA specializes in Applied Behavior Analysis (ABA) therapy, a highly effective treatment for children with autism. Reach out to a trusted provider like The Behavior Place to discuss how ABA can support your child’s development. Starting this conversation early ensures your child receives the best possible care.
• Contact The Behavior Place for a tour.
• Find Early Intervention Services: Early intervention is crucial for children under three years old. These programs offer therapies that can help address developmental delays. Your pediatrician can refer you to local services, or you can contact your state’s Early Intervention Program directly.
• Notify Your Child’s Pediatrician: It’s important to keep your pediatrician in the loop. Schedule a follow-up appointment to discuss next steps, including any necessary referrals to specialists such as speech therapists, occupational therapists, or developmental pediatricians.

2. Start Researching Key Topics

Understanding autism and the resources available will help you feel more prepared and empowered. However, try not to overwhelm yourself with too much information at once.

• Learn About Autism: Start with reliable sources like the CDC, ASAT, Autism Speaks, or The Behavior Place’s blog. Focus on gaining a foundational understanding of autism—what it is, how it affects children, and what to expect as you move forward.
• Read: New Parent Information Packet
• Explore ABA Therapy: ABA therapy is a well-established approach to helping children with autism develop important skills. Learning about how ABA works can give you insight into the types of interventions that may benefit your child.
• Learn More: Applied Behavior Analysis
• Look Into Local Resources: Every community has different resources available for families of children with autism. Research local support groups, educational resources, and community programs that can offer both emotional and practical support.

3. Build a Daily Routine for Your Child

Creating a consistent daily routine can help your child feel more secure and reduce anxiety. This is an important step in helping your child adapt to changes and learn new skills.

• Start Small: Don’t try to change everything at once. Introduce simple routines—such as consistent wake-up, meal, and bedtime times—and gradually build from there. Consistency is key.
• Use Visual Supports: Many children with autism benefit from visual aids like schedules or picture charts. These tools help them understand what to expect throughout the day, making transitions smoother.
• Download Our Visual Schedule Template
• Set Up a Calm Space: Creating a sensory-friendly area in your home can provide a safe space for your child to relax when they feel overwhelmed. Consider soft lighting, comfortable seating, and calming sensory items.

4. Prioritize Self-Care

It’s easy to forget about your own needs when you’re focused on your child, but taking care of yourself is essential. Stress can take a toll on both you and your family, so it’s important to prioritize self-care.

• Take Time for Yourself: Even small breaks can help. Whether it’s a short walk, a few minutes of meditation, or reading a book, find activities that help you recharge.
• Seek Emotional Support: Don’t hesitate to talk about your feelings with someone you trust. Whether it’s a friend, family member, or counselor, sharing your experiences can help lighten the emotional load.
• Join a Parent Support Group: Connecting with other parents who understand what you’re going through can provide both emotional support and practical advice. The Behavior Place offers an online community where you can share, learn, and connect with other parents.
• Join Our Online Community

5. Plan for the Future—One Step at a Time

It’s natural to think about the future, but try not to get overwhelmed by long-term planning. Focus on what you can do today and tomorrow, and take things one step at a time.

• Set Short-Term Goals: Break down larger goals into smaller, manageable steps. For example, rather than worrying about your child’s schooling years from now, focus on helping them develop communication skills this week.
• Document Your Child’s Progress: Start a journal or use a progress tracking sheet to note small victories and challenges. This can help you see patterns, celebrate successes, and adjust strategies as needed.
• Download Our Progress Tracking Sheet

Final Thoughts

The first week after an autism diagnosis can be challenging, but you don’t have to navigate it alone. By taking these steps, you’ll be setting a strong foundation for your child’s future growth and development. Remember, each small step you take makes a big difference.

At The Behavior Place, we’re here to support you every step of the way. Whether you’re looking for guidance, resources, or a community of parents who understand, we’re ready to help.

• Download Your First Steps Checklist Here
• Schedule a Tour at The Behavior Place